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Quality of Life and Coping Strategies Survey
The purpose of this study is to examine whether or not there is a relationship between quality of life and coping strategies for adults with celiac disease adhering to a gluten free diet. Participation is voluntary and requires completion of three surveys, which can be accessed from the link provided. Voluntary completion of the surveys will confirm consent to participate. The estimated time to complete all three surveys is approximately 45 minutes.
Links for 3 separate Surveys:
Demographic Information and Health and Diet History:
Email - Click here to send e-mail
Webpage: Click here to take survey
Psychological General Well Being Index:
E-mail - Click here to send e-mail
Webpage: Click here to take survey
Brief COPE:
E-mail - Click here to send e-mail
Webpage: Click here to take survey
DUQUESNE UNIVERSITY
600 FORBES AVENUE, PITTSBURGH, PA15282
CONSENT TO PARTICIPATE IN A RESEARCH STUDY
TITLE: What Is the Relationship Between Quality of Life and Coping Strategies in Adults with Celiac Disease Adhering to a Gluten Free Diet?
INVESTIGATOR: Melissa M. Smith, PhD(c), APRN, BC, CNS
Doctoral Candidate
DuquesneUniversity
School of Nursing
Pittsburgh,PA 15282
(W) (330) 363-3930
ADVISOR: Linda Goodfellow, PhD, RN
Associate Professor
DuquesneUniversitySchool of Nursing
517 Fisher Hall
Pittsburgh,PA15282
(412) 396-6548
SOURCE OF SUPPORT: This study is being performed as partial fulfillment of the requirements for the doctoral degree in nursing at DuquesneUniversity. This study is supported by a grant from the Society of Gastroenterology Nurses and Associates, Inc.
PURPOSE: You are being asked to participate in a research project that seeks to investigate whether or not there is a relationship between quality of life and coping strategies for adults with celiac disease adhering to a gluten free diet and to determine if there are any perceived causes that interfere with adherence to a gluten free diet
These are the only requests that will be made of you.
RISKS AND BENEFITS: There are no risks greater than those encountered in everyday life. The benefit to you will be knowing that you will help in identifying coping strategies of adults with celiac disease adhering to a gluten free diet and that the results may eventually result in the development of cognitive-behavioral interventions and/or educational programs designed to improve quality of life in people just like you with celiac disease.
COMPENSATION: You are not required to pay to participate in this study and you will not be paid to participate in this study.
A $500.00 honorarium will be given to the Gluten Intolerance Group in gratitude for their assistance in creating the link for you to complete the questionnaires. This donation will be used by the Gluten Intolerance Group for further research.
CONFIDENTIALITY: Your name will never appear on any survey or research instruments. If any personal identification is provided, your responses to the questionnaires will be deleted.
No identity will be made in the data analysis. Your responses will only appear in statistical data summaries. All materials will be destroyed at the completion of the study after all data have been analyzed and the findings have been reported.
RIGHT TO WITHDRAW: You are under no obligation to participate in this study. You are free to withdraw your consent to participate at any time.
SUMMARY OF RESULTS: A summary of the results of this research will be submitted for publication in a peer review professional nursing journal.
VOLUNTARY CONSENT: Voluntary completion of the surveys will confirm consent to participate. The estimated time to complete all three surveys is approximately 45 minutes.
I have read the above statements and understand what is being requested of me. I also understand that my participation is voluntary and that I am free to stop at any time, not complete the surveys and thus, withdraw my consent at any time, for any reason. On these terms, I certify that I am willing to participate in this research project.
I understand that should I have any further questions about my participation in this study, I may call Melissa M. Smith, Principal Investigator (330) 363-3930, Linda Goodfellow (412) 396-6548 Advisor, and Dr. Paul Richer, Chair of the Duquesne University Institutional Review Board 412-396-6326).
If you agree to participate in this study, please click on the link provided and complete the questionnaires.
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